# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!


Acute Disseminated Encephalomyelitis

Get Update


Type of Disease: Rare conditions Infectious disease Autoinflammatory

Trusted Medical Sites

Genetic & Rare Diseases Information Center (GARD) GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

Support Organizations

Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.

Disease Resources

Resources can help guide your quest for factual and reliable information.
Displaying 1-5 of 30 results.
New Brochure
Publish Date: Mar 22, 2019
Category: General
Language(s): English, French, Spanish
Latest general information on Cutis Laxa Internationale
Our Hope Ambassadors
Added On: Jun 20, 2019
Category: General
They are a community of heroes for a common cause – to advance diagnosis, treatment, research, and awareness of rare neuroimmune disorders, and to share their stories with others.
Smart Patients Online Community
Added On: Jun 20, 2019
Category: General
Join an online community of patients and caregivers. Be connected directly to other members via the Smart Patients Online Health Community.
VHL Alliance Newsletter
Added By: VHL Alliance
Added On: Jun 20, 2019
Category: General
The newsletter is designed to educate and empower patients and all those impacted by VHL. It is a critical piece of VHLA’s educational and support efforts.
VHL Alliance Blog
Added By: VHL Alliance
Added On: Jun 20, 2019
Category: Blogs
There are no true rules for the VHL journey. It is different for everyone. VHL impacts everyone, the VHLer and those who love the VHLer. Read how others are living through and thriving during their journey.