Alopecia universalis congenita

Common Name(s)

Alopecia universalis congenita

Alopecia universalis congenita is a severe autosomal recessive form of alopecia characterized by a complete absence of hair development affecting all scalp and body hair ({7:Nothen et al., 1998}). This rare disorder is clearly distinct from alopecia areata (AA1; {104000}), which has an autoimmune basis with probable genetic predisposition.
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Alopecia universalis congenita" for support, advocacy or research.

Bald Girls Do Lunch Inc

Bald Girls Do Lunch (BGDL) helps women with alopecia areata live full and fulfilling lives, and it’s all centered around the idea of getting together for “lunch.” Our lunches and other events are fun, friendly, educational, relaxing and, most of all, totally empowering. By being with people who experience the same things as you, your self-esteem improves and you gain confidence, camaraderie and a powerful sense of community.

Last Updated: 14 Aug 2014

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General Support Organizations

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How do you compare to others with this condition?

Privately answer questions about your health. Let resources, you select, come to you.

Anonymously share and see how your answers compare with others with this condition while privately providing key pieces of information to medical researchers, disease advocacy groups, and others ONLY YOU select to help speed up cures and better alternatives.

 
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Alopecia universalis congenita" for support, advocacy or research.

Bald Girls Do Lunch Inc

Bald Girls Do Lunch (BGDL) helps women with alopecia areata live full and fulfilling lives, and it’s all centered around the idea of getting together for “lunch.” Our lunches and other events are fun, friendly, educational, relaxing and, most of all, totally empowering. By being with people who experience the same things as you, your self-esteem improves and you gain confidence, camaraderie and a powerful sense of community.

http://www.baldgirlsdolunch.org

Last Updated: 14 Aug 2014

View Details

 

General Support Organizations

Not finding the support you need? Show General Support Organizations

 
 
 
 
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General Resources

How Are You Nurturing Your Self Image

Patient-focused education for women with alopecia diagnoses.

Updated 14 Aug 2014

Open Doc
Understanding the Lives of Women with Alopecia Areata

Public awareness and patient-focused Infographic suitable for printing

Updated 14 Aug 2014

Open Doc
Video: Bald Girls Do Lunch (NYC)

"Spring in the City": Bald Girls Do Lunch Founder Thea Chassin hosts a BGDL evening in New York City

Updated 14 Aug 2014

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VIDEO: BGDL on the TODAY SHOW

The TODAY show came on location with Thea Chassin and Bald Girls Do Lunch in Illinois

Updated 14 Aug 2014

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National Public Radio on location with BGDL

NPR producer Patrick Skahill interviews Thea Chassin on location at Bald Girls Do Lunch in Connecticut.

Updated 14 Aug 2014

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Alopecia universalis congenita" returned 1 free, full-text research articles on human participants. First 3 results:

Hirschsprung's disease associated with alopecia universalis congenita: a case report.
 

Author(s): Sushma Malik, Mani Singhal, Shruti Sudhir Jadhav, Charusheela Sujit Korday, Chitra Shivanand Nayak

Journal:

 

Hirschsprung's disease is one of the commonest causes of intestinal obstruction in neonates because of gut motility disorder. It is characterized as a complex genetic heterogenous disorder with variable inheritance. Hirschsprung's disease occurs as an isolated phenotype in majority ...

Last Updated: 31 Dec 1969

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Alopecia universalis congenita" returned 0 free, full-text review articles on human participants.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

There are currently no open clinical trials for this condition.