Amyloidosis

Common Name(s)

Amyloidosis

Amyloidosis is a term for diseases caused by the misfolding of the amyloid protein. Deposits of these insoluble fibrillar proteins build up in tissues and lead to organ disfunction. This is a rare and serious disease. Early and accurate diagnosis is necessary as treatments are specific to the different types. The main types are: AL or "primary"; AA or "secondary"; FAP or "familial" (hereditary); and localized. Evaluation by physicians who specialize in diagnosis and treatment is critical.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Amyloidosis" for support, advocacy or research.

Amyloidosis Support Groups Inc.

• To form Amyloidosis Support Groups where needed and to have all Amyloidosis Support Groups be self-sustaining through donations (general, memorial, note cards and other awareness items) • To fund and maintain libraries of educational materials for all support groups. • To fund group projects that will help in spreading awareness, co-sponsor Amyloidosis treatment and research fundraisers, and encourage grand rounds be held on amyloidosis at local hospitals and help to encourage money be raised for such projects. • To purchase and provide awareness items such as pins, wristbands and other similar items for meetings, memorials, and fundraisers To help finance the annual educational retreat for training new and current group leaders and facilitators • To maintain a 24/7 toll free “Hot/Help Line” to answer all support inquires. • To provide on-going maintenance and informational updates on the A.S.G. web-site ( http://www.amyloidosissupport.com ). • To promote, monitor

Last Updated: 19 Nov 2012

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General Support Organizations

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How do you compare to others with this condition?

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Amyloidosis" for support, advocacy or research.

Amyloidosis Support Groups Inc.

• To form Amyloidosis Support Groups where needed and to have all Amyloidosis Support Groups be self-sustaining through donations (general, memorial, note cards and other awareness items) • To fund and maintain libraries of educational materials for all support groups. • To fund group projects that will help in spreading awareness, co-sponsor Amyloidosis treatment and research fundraisers, and encourage grand rounds be held on amyloidosis at local hospitals and help to encourage money be raised for such projects. • To purchase and provide awareness items such as pins, wristbands and other similar items for meetings, memorials, and fundraisers To help finance the annual educational retreat for training new and current group leaders and facilitators • To maintain a 24/7 toll free “Hot/Help Line” to answer all support inquires. • To provide on-going maintenance and informational updates on the A.S.G. web-site ( http://www.amyloidosissupport.com ). • To promote, monitor

http://www.amyloidosissupport.com

Last Updated: 19 Nov 2012

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Amyloidosis" returned 1912 free, full-text research articles on human participants. First 3 results:

Behçet disease associated with gastrointestinal amyloidosis manifested as hematochezia: A case report.
 

Author(s): Shuzo Sato, Makiko Yashiro, Naoki Matsuoka, Satoshi Kawana, Tomoyuki Asano, Hiroko Kobayashi, Kazuhiro Tasaki, Hiroshi Watanabe, Yuko Hashimoto, Kiyoshi Migita

Journal: Medicine (Baltimore). 2018 Jun;97(26):e11153.

 

Behçet disease (BD) is an inflammatory disorder characterized by recurrent oral aphthous ulcers, genital ulcers, ocular lesions, and skin lesions. Complication of amyloidosis in patients with BD is rare. Here, we report a case of BD with immunoglobulin light chain (AL)-amyloidosis ...

Last Updated: 31 Dec 1969

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Macroglossia in Light-Chain Amyloidosis.
 

Author(s): João Melo Alves, Natália Marto

Journal: N. Engl. J. Med.. 2018 Jun;378(24):2321.

 

Last Updated: 31 Dec 1969

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Primary Sjogren syndrome diagnosed simultaneously with localized amyloidosis of the lacrimal gland: A case report.
 

Author(s): Seong-Min Kweon, Jung Hee Koh, Han-Na Lee, Eunsung Kim, Min Wook So, Ho-Jin Shin, Hee Young Choi, Seung-Geun Lee

Journal: Medicine (Baltimore). 2018 Jun;97(23):e11014.

 

Amyloidosis accompanied by Sjögren's syndrome (SS) has been reported to occur primarily in the skin, lungs, tongue, and mammary gland. However, SS in association with secondary amyloidosis is rarely reported, and knowledge of its relevance is inadequate. Here we report a case of ...

Last Updated: 31 Dec 1969

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Amyloidosis" returned 201 free, full-text review articles on human participants. First 3 results:

Atrophic nodular cutaneous amyloidosis.
 

Author(s): Yuan Jiang, Qingtao Kong, Yun Hui, Hong Sang

Journal: An Bras Dermatol. ;93(1):111-113.

 

Primary cutaneous amyloidosis is limited to the skin without involving any other tissue. Nodular amyloidosis is rare, and atrophic nodular cutaneous amyloidosis is even rarer. We describe the fourth case of atrophic nodular cutaneous amyloidosis by searching PubMed databases. A 52-year-old ...

Last Updated: 31 Dec 1969

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Hereditary ATTR amyloidosis: burden of illness and diagnostic challenges.
 

Author(s): Morie A Gertz

Journal: Am J Manag Care. 2017 Jun;23(7 Suppl):S107-S112.

 

Hereditary transthyretin-mediated (hATTR) amyloidosis is a progressive disease characterized by deposition of amyloid fibrils in various organs and tissues of the body. There are a wide variety of clinical presentations for this multisystemic disorder, so it is often misdiagnosed ...

Last Updated: 31 Dec 1969

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Undiagnosed senile systemic amyloidosis with mesenteric angiopathy leading to fatal outcomes: Two case series with a review of literature.
 

Author(s): Avneesh Gupta, Maryna Tarbunova, Anil Aggrawal, Anges E Aysola

Journal: Indian J Pathol Microbiol. ;60(3):421-423.

 

Amyloid mesenteric angiopathy is difficult to diagnose as gastrointestinal (GI) signs are nonspecific and radiological studies rarely identify amyloid deposits with certainty. The objective of this study was to highlight the pathological findings of amyloid mesenteric angiopathy in ...

Last Updated: 31 Dec 1969

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Clinical Trial Information This information is provided by ClinicalTrials.gov

Institutional Registry of Amyloidosis
 

Status: Recruiting

Condition Summary: Amyloidosis

 

Last Updated: 22 Feb 2017

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Last Updated: 28 Jul 2017

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Last Updated: 8 Jan 2018

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