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Medical Disclaimer
The medical information on this site is provided as an information resource only, and is not to be used or relied on for any diagnostic or treatment purposes. This information is not intended to be patient education, does not create any patient-physician relationship, and should not be used as a substitute for professional diagnosis and treatment.
Ectodermal Dysplasia 2, Hidrotic
Overview
Hidrotic ectodermal dysplasia 2, or Clouston sundrome, is a rare genetic disorder. People with hidrotic ectodermal dysplasia 2 usually have wiry, brittle, and pale hair with milky white nails when they are born. After a few years they begin to lose all their hair and in extreme cases may be completely bald by the time they enter puberty. Other symptoms of hidrotic ectodermal dysplasia 2 include degeneration of the nails, more pigment (color) in the skin over their joints, and clubbed fingers. Talk with your doctor to find the best treatment for you if you have been diagnosed with hidrotic ectodermal dysplasia 2.
Trusted Medical Sites
Genetic & Rare Diseases Information Center (GARD)
GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.
Support Organizations
Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.
Disease Resources
Resources can help guide your quest for factual and reliable information.
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The Progeria Handbook; A Guide for Families and Health Care Providers of Children with Progeria.
This 100-page handbook helps answer many questions for children with Progeria about how to optimize quality of life through daily care and medical treatment. Contains basic health facts,daily care recommendations and extensive treatment guidelines.
AAMDSIF Online Academy (webinars)
200+ FREE webinars for patients, families and caregivers about rare blood cancers and bone marrow failure diseases.
Educational Resources
Publications, links to patient conferences and webinars
Disease Information
Descriptions of various rare blood cancers and bone marrow failure diseases.