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Medical Disclaimer
The medical information on this site is provided as an information resource only, and is not to be used or relied on for any diagnostic or treatment purposes. This information is not intended to be patient education, does not create any patient-physician relationship, and should not be used as a substitute for professional diagnosis and treatment.
Ectodermal Dysplasia 2, Hidrotic
Overview
Hidrotic ectodermal dysplasia 2, or Clouston sundrome, is a rare genetic disorder. People with hidrotic ectodermal dysplasia 2 usually have wiry, brittle, and pale hair with milky white nails when they are born. After a few years they begin to lose all their hair and in extreme cases may be completely bald by the time they enter puberty. Other symptoms of hidrotic ectodermal dysplasia 2 include degeneration of the nails, more pigment (color) in the skin over their joints, and clubbed fingers. Talk with your doctor to find the best treatment for you if you have been diagnosed with hidrotic ectodermal dysplasia 2.
Trusted Medical Sites
Genetic & Rare Diseases Information Center (GARD)
GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.
Support Organizations
Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.
Disease Resources
Resources can help guide your quest for factual and reliable information.
FSHD Basics
A brief overview of the disease.
Mal de Debarquement Foundation Blog
Read experiences of those living with Mal de Debarquement Syndrome in the blog. If you would like to add your experience please send it to connect@mddsfoundation for vetting and review.
Cure CMD's YouTube Channel
Hundreds of hours of educational webinars about CMD
Grant Program Explanation
Grant Program Information for Clinical Research
Antiphospholipid Antibody Syndrome (APS) & Pregnancy
Antiphospholipid syndrome (APS) is an illness that involve the immune system, and causes increased clotting of the blood.