Erythromelalgia, Primary

Common Name(s)

Erythromelalgia, Primary

Erythromelalgia (EM), is a rare disorder that is characterized by episodes of burning pain, warmth, and redness in the hands and feet. The cause of the symptoms in erythromelalgia is unknown.
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Erythromelalgia, Primary" for support, advocacy or research.

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Ben's Friends

Our mission is to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like them.

Last Updated: 11 Jul 2016

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The Erythromelalgia (Burning Feet) Association

The Erythromelalgia Association has as its mission to identify, educate, and support those suffering EM’s painful symptoms; to help fund research leading to a cure for this rare disorder; to raise public awareness of EM; and to educate healthcare practitioners to recognize and diagnose EM. TEA places a special emphasis on helping identify, educate, support and assist those individuals who do not have access to the Internet. Because most physicians are NOT familiar with erythromelalgia symptoms and/or treatment there is a great need to educate the medical community as well.

Last Updated: 19 Feb 2013

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General Support Organizations

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How do you compare to others with this condition?

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Erythromelalgia, Primary" for support, advocacy or research.

Logo
Ben's Friends

Our mission is to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like them.

http://www.bensfriends.org

Last Updated: 11 Jul 2016

View Details
Logo
The Erythromelalgia (Burning Feet) Association

The Erythromelalgia Association has as its mission to identify, educate, and support those suffering EM’s painful symptoms; to help fund research leading to a cure for this rare disorder; to raise public awareness of EM; and to educate healthcare practitioners to recognize and diagnose EM. TEA places a special emphasis on helping identify, educate, support and assist those individuals who do not have access to the Internet. Because most physicians are NOT familiar with erythromelalgia symptoms and/or treatment there is a great need to educate the medical community as well.

http://www.erythromelalgia.org/

Last Updated: 19 Feb 2013

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General Support Organizations

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Erythromelalgia, Primary" returned 0 free, full-text research articles on human participants.

Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Erythromelalgia, Primary" returned 0 free, full-text review articles on human participants.

 
 
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Symptoms, Diagnosis, and Treatment

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

There are currently no open clinical trials for this condition.