Frontotemporal dementia with parkinsonism-17

Common Name(s)

Frontotemporal dementia with parkinsonism-17

Frontotemporal dementia with parkinsonism-17 (FTDP-17) is a progressive (gradually worsening) brain disorder that affects language, behavior, and movement. Symptoms typically onset in a person's forties or fifties and typically involve speech. Other symptoms may include repeating things spoken by others (echolalia), loss of inhibition, inappropriate emotional responses, restlessness, neglect of personal hygiene, loss of interest, and rapid or reduced eye movement. Affected individuals also may experience features of parkinsonism, including: tremors, rigidity, and unusually slow movement. Survival after onset of symptoms is typically 5-10 years though there are reports of much longer. Prevalence is believed to be roughly one in one million people, although it is not always diagnosed correctly so prevalence may be higher. FTDP-17 is thought to account for only a small percentage of all frontotemporal dementia cases (please also visit: frontotemporal dementia.). Treatment varies on a case-by-case basis, and depends on the patient's specific symptoms.

This condition is autosomal dominant, meaning that is it passed from parent to child. We inherit our genes in pairs, one from each parent typically. Our genes are what control the growth, development and function of our bodies. If a mistake or error occurs in a gene, it can cause problems. Autosomal dominant means that if one parent has the condition (therefore the mutation) there is a 50% chance that they will pass it on to each of their children. Treatment varies on a case-by-case basis, and depends on the patient's specific symptoms.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Frontotemporal dementia with parkinsonism-17" for support, advocacy or research.

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Association for Frontotemporal Degeneration

The Association for Frontotemporal Degeneration (AFTD) is a nationwide non-profit organization whose mission is to promote and fund research into finding the cause and cure for the frontotemporal dementias; to provide information, education, and support to persons diagnosed with frontotemporal dementias (FTD) and their families and caregivers; and to educate physicians and allied health professionals about FTD.

Last Updated: 8 Jul 2015

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General Support Organizations

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Frontotemporal dementia with parkinsonism-17" for support, advocacy or research.

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Association for Frontotemporal Degeneration

The Association for Frontotemporal Degeneration (AFTD) is a nationwide non-profit organization whose mission is to promote and fund research into finding the cause and cure for the frontotemporal dementias; to provide information, education, and support to persons diagnosed with frontotemporal dementias (FTD) and their families and caregivers; and to educate physicians and allied health professionals about FTD.

http://www.theaftd.org

Last Updated: 8 Jul 2015

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Frontotemporal dementia with parkinsonism-17" returned 0 free, full-text research articles on human participants.

Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Frontotemporal dementia with parkinsonism-17" returned 0 free, full-text review articles on human participants.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

Intranasal Oxytocin for Frontotemporal Dementia
 

Status: Recruiting

Condition Summary: Frontotemporal Dementia

 

Last Updated: 27 Jun 2018

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Impact of Emotional Mimicry and Oxytocin on Frontotemporal Dementia
 

Status: Recruiting

Condition Summary: Frontotemporal Dementia

 

Last Updated: 9 Mar 2017

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Last Updated: 12 Jun 2018

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