Hidradenitis suppurativa

Common Name(s)

Hidradenitis suppurativa, Hidradenitis suppurativa familial

Hidradenitis suppurativa (HS) is a rare condition that causes abscesses and cysts to form on a person’s skin. The most commonly affected areas are the underarms, under the breasts, inner thighs, groin, and buttocks. Though this disease is not contagious, it can be extremely painful for that affected person. Cysts that form from HS can go through periods of inflammation, swelling to the size of golf and even tennis balls. In certain cases, a small incision can be made to drain the cyst. In more severe cases sinus tracts can form between cysts, which can lead to open wounds that take a long time to heal. Certain factors such as hot and humid weather, as well as wearing clothes that do not breathe and rub the cysts, can cause inflammation.

HS is not a rare condition. It is estimated that it affects between 1/100 to 1/1000 in Western populations. Females are more likely to be affected, with a female to male ratio of 4 or 5 to 1. Symptoms of HS normally begin after puberty but rarely after menopause with the mean age of onset being 20-23 years old. The specific cause of HS is unknown, although it probably results from a combination of genetic and environmental factors. Talk to your doctor to decide on the best treatment if you or a family member has been diagnosed with HS. Support groups are also a good source of information and a way to connect with others affected with HS.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Hidradenitis suppurativa" for support, advocacy or research.

European Hidradenitis Suppurativa Foundation eV

The purpose of the Foundation is the promotion of science and research in the field of disease hidradenitis suppurativa / acne inversa. The purpose of the Foundation is to be achieved by raising funds for the promotion of research projects in the field of disease hidradenitis suppurativa / acne inversa by other entities or persons. Purpose of the Foundation is also the training of doctors, patients and laypersons. The Foundation pursues exclusively charitable purposes within the meaning of the "tax-privileged purposes" of the tax code.

Last Updated: 1 Apr 2013

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Hidradenitis Suppurativa Foundation, Inc.

The mission of the Hidradentitis Suppurativa Foundation, Inc. (HSF) is to foster and encourage worldwide research by developing and supporting an interdisciplinary family of scientists and physicians devoted to studying the molecular and cellular basis of Hidradentitis Suppurativa (HS), in order to develop and deliver more effective forms of treatment and preventative measures for those with this common, debilitating, and eminently chronic disease.

Last Updated: 10 May 2013

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General Support Organizations

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How do you compare to others with this condition?

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Hidradenitis suppurativa" for support, advocacy or research.

European Hidradenitis Suppurativa Foundation eV

The purpose of the Foundation is the promotion of science and research in the field of disease hidradenitis suppurativa / acne inversa. The purpose of the Foundation is to be achieved by raising funds for the promotion of research projects in the field of disease hidradenitis suppurativa / acne inversa by other entities or persons. Purpose of the Foundation is also the training of doctors, patients and laypersons. The Foundation pursues exclusively charitable purposes within the meaning of the "tax-privileged purposes" of the tax code.

http://www.klinikum-dessau.de/klinikenundinstitute/hautklinikundimmuno ...

Last Updated: 1 Apr 2013

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Hidradenitis Suppurativa Foundation, Inc.

The mission of the Hidradentitis Suppurativa Foundation, Inc. (HSF) is to foster and encourage worldwide research by developing and supporting an interdisciplinary family of scientists and physicians devoted to studying the molecular and cellular basis of Hidradentitis Suppurativa (HS), in order to develop and deliver more effective forms of treatment and preventative measures for those with this common, debilitating, and eminently chronic disease.

http://www.hs-foundation.org/

Last Updated: 10 May 2013

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Hidradenitis suppurativa" returned 151 free, full-text research articles on human participants. First 3 results:

Hidradenitis suppurativa associated with systemic lupus erythematosus: A case report.
 

Author(s): Chen Ben David, Nicola L Bragazzi, Abdulla Watad, Kassem Sharif, Aaron Whitby, Howard Amital, Mohammad Adawi

Journal: Medicine (Baltimore). 2018 Mar;97(12):e0186.

 

Hidradenitis suppurativa (HS) is a chronic inflammatory condition characterized by recurrent swollen, deep, and painful abscesses. Several autoimmune conditions have been shown to be associated with HS including inflammatory bowel disease and spondyloarthropathies.

Last Updated: 31 Dec 1969

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Carotid ultrasound is useful for the cardiovascular risk stratification in patients with hidradenitis suppurativa.
 

Author(s): Marcos A González-López, Marina Lacalle, Cristina Mata, María López-Escobar, Alfonso Corrales, Raquel López-Mejías, Javier Rueda, M Carmen González-Vela, Miguel A González-Gay, Ricardo Blanco, José L Hernández

Journal:

 

Hidradenitis suppurativa (HS) is a chronic inflammatory cutaneous disease which has been associated with an increased risk of adverse cardiovascular (CV) outcomes. Adequate stratification of the CV risk is an issue of major importance in patients with HS. To analyze the usefulness ...

Last Updated: 31 Dec 1969

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Clinical Diagnosis of Hidradenitis Suppurativa.
 

Author(s): Anna Beltrame, Silvia Staffolani

Journal: N. Engl. J. Med.. 2017 Dec;377(25):2474.

 

Last Updated: 31 Dec 1969

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Hidradenitis suppurativa" returned 25 free, full-text review articles on human participants. First 3 results:

Hidradenitis suppurativa - Management, comorbidities and monitoring.
 

Author(s): Dunja A Vekic, Geoffrey D Cains

Journal: Aust Fam Physician. 2017 ;46(8):584-588.

 

Hidradenitis suppurativa (HS) is a chronic inflammatory disease presenting in intertriginous areas. HS is associated with a number of disease-modifying comorbidities, including metabolic syndrome and androgen dysfunction, and smoking.

Last Updated: 31 Dec 1969

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What is hidradenitis suppurativa?
 

Author(s): Erika Yue Lee, Raed Alhusayen, Perla Lansang, Neil Shear, Jensen Yeung

Journal: Can Fam Physician. 2017 Feb;63(2):114-120.

 

To provide family physicians with an understanding of the epidemiology, clinical features, diagnosis, and management of hidradenitis suppurativa (HS).

Last Updated: 31 Dec 1969

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Adalimumab for Treating Moderate-to-Severe Hidradenitis Suppurativa: An Evidence Review Group Perspective of a NICE Single Technology Appraisal.
 

Author(s): Paul Tappenden, Christopher Carroll, John W Stevens, Andrew Rawdin, Sabine Grimm, Mark Clowes, Eva Kaltenthaler, John R Ingram, Fiona Collier, Mohammad Ghazavi

Journal: Pharmacoeconomics. 2017 Aug;35(8):805-815.

 

As part of its single technology appraisal (STA) process, the UK National Institute for Health and Care Excellence (NICE) invited the manufacturer of adalimumab (AbbVie) to submit evidence on the clinical effectiveness and cost effectiveness of adalimumab for the treatment of moderate-to-severe ...

Last Updated: 31 Dec 1969

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Clinical Trial Information This information is provided by ClinicalTrials.gov

A Study of MABp1 in Patients With Hidradenitis Suppurativa
 

Status: Recruiting

Condition Summary: Hidradenitis Suppurativa

 

Last Updated: 9 Jul 2018

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A National Registry For Patients With Hidradenitis Suppurativa
 

Status: Recruiting

Condition Summary: Hidradenitis Suppurativa

 

Last Updated: 10 Apr 2018

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Treatment of Hidradenitis Suppurativa With Eth 755nm Alexandrite Laser
 

Status: Recruiting

Condition Summary: Hidradenitis Suppurativa

 

Last Updated: 11 May 2017

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