Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!
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Medical Disclaimer
The medical information on this site is provided as an information resource only, and is not to be used or relied on for any diagnostic or treatment purposes. This information is not intended to be patient education, does not create any patient-physician relationship, and should not be used as a substitute for professional diagnosis and treatment.
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Our Mission: Improve the lives of families affected by BBS through information, support and by advancing research and therapy
Our Vision: Effective support, therapy, and treatment for all people affected by Bardet Biedl Syndrome
Our mission is to promote international knowledge and awareness of WAGR syndrome and its complications and treatments, to stimulate research and to reach out to those affected by WAGR syndrome in an effort to improve their lives.
LDA’s mission is to create opportunities for success for all individuals affected by learning disabilities and to reduce the incidence of learning disabilities in future generations.
Missouri Family to Family provides customized information that allows families and individuals about needed resources and supports, navigating the maze of systems and services, as well as options to make their vision for their life possible. MOF2F also offers ...
The National Center for Learning Disabilities’ (NCLD) mission is to ensure success for all individuals with learning disabilities in school, at work and in life by:
connecting parents and others with resources, guidance and support so they can advocate effectively for ...
To Provide emotional, informational and navigational support to those who have special health care needs or a disability, their families and the professionals who serve them. OFN promotes family/professional partnerships and family-centered care, assuring services are offered as recipients ...
The Arc of East Central Iowa empowers people with intellectual and related disabilities to engage in lifelong opportunities to live, learn, work and play with dignity, freedom and full inclusion in their communities.
We support children with special needs and their families by providing information, peer support, and education, and building partnerships with professionals and communities.
To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.
The mission of Any Baby Can is to serve families with children and youth facing serious health or developmental challenges.