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Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!


Metabolic Diseases

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Type of Disease: Not available

Trusted Medical Sites

Genetic & Rare Diseases Information Center (GARD) GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

Support Organizations

Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.

Disease Resources

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Displaying 1-3 of 3 results.
Overview of Barth syndrome
Added On: Jan 14, 2015
Category: General
Overview of Barth syndrome
How to Diagnose
Added On: Jan 14, 2015
Category: General
How to diagnose Barth syndrome
Probono Grief Support
Added On: Mar 3, 2013
Category: General
Deb Lee Gould, MEd, is a bereaved parent since 1985 and a Grief Consultant. She offers pro bono grief support to parents and other adult family members and friends living with the death of a child of any age and from any cause.