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Myopathic carnitine palmitoyltransferase II deficiency

Late-onset carnitine palmitoyltransferase II deficiency
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Support Type
Support Services
Displaying 1-10 of 23 results.
Area Served: National
Established: 1983
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 3 Jan 2019
Climb is committed to fighting metabolic diseases through research, awareness and support. We are the UK's only dedicated organisation to provide advice, information and support on all metabolic diseases to children, young adults, families, carers and professionals.
Area Served: International
Established: 1991
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 12 Jun 2019
Our mission is to connect and network with FOD Families and professionals around the world and to provide ongoing emotional and grief support, family stories, practical information about living with these disorders, and medical updates to inform families of new ...
Area Served: United States
Established: 2005
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 3 Jan 2019
MitoAction is a nonprofit organization dedicated to improving the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, and clinical research initiatives.
Area Served: United States
Established: 1995
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 15 Jun 2019
The United Mitochondrial Disease Foundation strives to promote research and education for the diagnosis, treatment and cures of mitochondrial disorders and to provide support to affected individuals and families.
Area Served: State
Established: 1987
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 11 Jun 2019
We support children with special needs and their families by providing information, peer support, and education, and building partnerships with professionals and communities.
Area Served: United States
Established: 2009
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 3 Jan 2019
To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.
Area Served: San Antonio
Established: 1982
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
General Support Organization
Last Updated: 25 Jun 2019
The mission of Any Baby Can is to serve families with children and youth facing serious health or developmental challenges.
Area Served: United Kingdom
Established: 1979
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
General Support Organization
Last Updated: 5 Sep 2019
Contact improves the lives of all families with disabled children. With them, we transform their lives, break down barriers and tackle disadvantage through ambitious, collaborative and innovative work. We make a real and lasting impact and are a force for ...
Area Served: Netherlands
Established: 2000
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 11 Jun 2019
Through providing objective, reliable information the Erfocentrum supports people in making informed choices regarding their own health and the health of their children. The Erfocentrum also supports people in forming their own personal opinions about social and ethical aspects of ...
Established: 1969
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 3 Jan 2019
To improve services for all children with disabilities.