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Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!

 

Neonatal adrenoleukodystrophy

NALD
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Overview

Type of Disease: Rare conditions Genetic, autosomal recessive Congenital onset Behavioral and mental health disorders Developmental disability (both intellectual and physical disabilities)

Trusted Medical Sites

Genetic & Rare Diseases Information Center (GARD) GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

Support Organizations

Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.

Disease Resources

Resources can help guide your quest for factual and reliable information.
Displaying 1-5 of 5 results.
ALD-AMN Route Map
Added By: ALD Life
Added On: Apr 4, 2013
Category: General
A dedicated website for providing patients and families affected by Adrenoleukodystrophy (ALD) and Adrenomyeloneuropathy (AMN) a journey of their health and social care needs.
GENEReveiws article "Peroxisome Biogenesis Disorders, Zellweger Syndrome Spectrum"
Added On: Jan 7, 2013
Category: General
This article by Steven J Steinberg, PhD, Gerald V Raymond, MD, Nancy E Braverman, MS, MD, and Ann B Moser, BA. was updated in May 2012 and is the most comprehensive English-language paper about this disorder.
Frequently Asked Questions about PBD-ZSD
Added On: Jan 6, 2013
Category: General
Frequently Asked Questions about Peroxisomal Biogenesis Disorder-Zellweger Spectrum Disorder (PBD-ZSD) compiled by the Global Foundation for Peroxisomal Disorders
Letter for Lab Directors
Added On: Jan 6, 2013
Category: General
Letter for laboratories who diagnosis individuals impacted by PBD-ZSD.
Letter for Physicians
Added On: Jan 6, 2013
Category: General
Letter for physicians who diagnosis/treat individuals impacted by PBD-ZSD.