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Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!


Neurofibromatosis type 1

Neurofibromatosis 1 (NF1)Von Recklinghausen Disease
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Type of Disease: Rare Condition or Disease Genetic, autosomal dominant Pediatric onset

Trusted Medical Sites

Genetic & Rare Diseases Information Center (GARD) GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

Support Organizations

Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.

Disease Resources

Resources can help guide your quest for factual and reliable information.
Displaying 1-5 of 6 results.
General NF and NF Midwest blog
Added On: Jul 27, 2020
Category: Blogs
Blog with frequent postings.
Understanding NF Booklet
Added On: Jul 27, 2020
Category: General
Simple booklet explaining what NF1, NF2, and schwannomatosis are.
Finding an NF Specialist or Doctor
Added On: Jul 27, 2020
Category: General
Includes information on how to find a doctor for NF or Schwannomatosis
NF1 Resources and Articles
Added On: Jul 27, 2020
Category: General
NF1 resources and articles are added frequently. Includes "Be iNFormed" articles that have been written by experts for the lay audience on various complications and concerns of NF1.
Understanding Neurofibromatosis
Added On: Mar 11, 2013
Category: General
Booklet for individuals who have been recently diagnosed with NF.