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Tetraamelia with pulmonary hypoplasia

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Overview

Type of Disease: Congenital onset

Trusted Medical Sites

Genetic & Rare Diseases Information Center (GARD) GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

Support Organizations

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Disease Resources

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Displaying 1-5 of 6 results.
AMP Lunch & Learns for Patient Advocacy Groups
Added On: Jun 12, 2019
Category: General
AMP holds periodic lunch events in Washington, DC for the patient advocacy group audience to inform about and discuss molecular testing (example: reimbursement challenges).
AMP Online Education
Added On: Jun 12, 2019
Category: General
AMP has an extensive collection of education about molecular testing.
Cure CMD's YouTube Channel
Added By: Cure CMD
Added On: Jun 11, 2019
Category: General
Language(s): English
Hundreds of hours of educational webinars about CMD
APS Friends & Support Forum
Added On: Nov 13, 2012
Category: Blogs
Language(s): English
Are you looking for Support for Antiphospholipid Antibody Syndrome, APS, APLS, APLA, Hughes Syndrome, or Sticky Blood? Well you've come to the right place! This is an closed forum for people who have Antiphospholipid Syndrome.
Antiphospholipid Antibody Syndrome (APS) & Pregnancy
Publish Date: Jun 18, 2019
Category: General
Language(s): English
Antiphospholipid syndrome (APS) is an illness that involve the immune system, and causes increased clotting of the blood.