Rare Disorder Partnership Successes: The U.S. Hemophilia Model
Author(s)
Judith Baker
Document Description
This is a talk about the success of the rare bleeding disorders partnerships which have resulted in better care and outcomes for the patient population.
Date Added
June 26, 2009
Keywords
rare diseases, rare disease research, special population, collaboratice clinical research, health services delivery, partnerships, regional collaborative, regional networks, capacity building, genetic blood disorders, genetic alliance annual conference 20
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Document Description
This is a talk about the success of the rare bleeding disorders partnerships which have resulted in better care and outcomes for the patient population.
Date Added
June 26, 2009
Keywords
rare diseases, rare disease research, special population, collaboratice clinical research, health services delivery, partnerships, regional collaborative, regional networks, capacity building, genetic blood disorders, genetic alliance annual conference 20