Region 4 Genetics Collaborative
Author(s)
Cynthia Cameron and Janice Bach
Document Description
The Region 4 Genetics Collaborative provides a bridge between public health, primary care providers, genetic specialists, and families of children who have genetic conditions, to identify issues and plan and implement strategies to improve the quality of newborn screening and genetic services, and access to those services. During this session, Program Director Cynthia Cameron, Ph.D. and the Region 4 team will discuss the region's work to 1) increase access to information about newborn screening and genetic resources, services, and family support systems; 2) facilitate data collection and analysis to guide decision-making on screening cut-diagnosis, and long term treatment of heritable disorders; 3) support public health agencies; 4) provide forums to share best practices and models for improving newborn screening, follow-up, and genetic care coordination; and 5) link Region 4 states with regional and national initiatives.
Date Added
September 30, 2009
Keywords
Genetic Alliance webinars, Meet Your Neighbors, Region 4 Genetics Collaborative, September 30, public health, primary care providers, genetic specialists, genetic conditions, newborn screening, and genetic services
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Document Description
The Region 4 Genetics Collaborative provides a bridge between public health, primary care providers, genetic specialists, and families of children who have genetic conditions, to identify issues and plan and implement strategies to improve the quality of newborn screening and genetic services, and access to those services. During this session, Program Director Cynthia Cameron, Ph.D. and the Region 4 team will discuss the region's work to 1) increase access to information about newborn screening and genetic resources, services, and family support systems; 2) facilitate data collection and analysis to guide decision-making on screening cut-diagnosis, and long term treatment of heritable disorders; 3) support public health agencies; 4) provide forums to share best practices and models for improving newborn screening, follow-up, and genetic care coordination; and 5) link Region 4 states with regional and national initiatives.
Date Added
September 30, 2009
Keywords
Genetic Alliance webinars, Meet Your Neighbors, Region 4 Genetics Collaborative, September 30, public health, primary care providers, genetic specialists, genetic conditions, newborn screening, and genetic services