Cure CMD Disease Support Organization Last Updated: Jun 11, 2019 12:20:25 am Brochure Established: 2009 Area Served: International Cure CMD’s mission is to advance research for treatments and a cure for the Congenital Muscular Dystrophies. Cure CMD will also improve the lives of those living with CMD through engagement and support of our community. Website: http://www.curecmd.org Diseases Supported Congenital Muscular Dystrophy • Alpha 7 Integrin Related Myopathy • Alpha 9 Integrin Related Myopathy • Collagen VI Related Myopathy (Ullrich through Bethlem CMD) • Alpha-Dystroglycan Related Muscular Dystrophy (Dystroglycanopathy, WWS, MEB, Fukuyama, FKRP, LGMD2I, LGMD2K, LGMD2M, LGMD2N, LGMD2O) • Choline Kinase B Receptor • LAMA2 Related Muscular Dystrophy (Laminin Alpha 2 related dystrophy/MDC1A/Merosin deficient) • LMNA Related Muscular Dystrophy (Laminopathy/LaminA/C, L-CMD, Emery Dreifuss muscular dystrophy) • SEPN1 Related Myopathy (Rigid Spine Muscular Dystrophy/RSMD1, Congenital Fiber Type Disproportion, Mallory Weiss Body Desmin, Multi-minicore Myopathy) • SYNE1 (Nesprin Related Muscular Dystrophy) • Telethonin Related Muscular Dystrophy (TCAP/Titin-Cap) • CMD Undiagnosed (including Merosin Positive) Show All 12Show Less 19401 S. Vermont Ave. Suite J100 Torrance, California 90502 United States None323-250-2399 firstname.lastname@example.org 1 address 1 contact Show All Connect: Staff Speaks: English, Spanish Telephone Translation: No (Translation services available for other languages) Our Organization Incorporated Nonprofit International Organization 501(c)3 Non-Profit Professional/Medical Board Board of Directors Paid Staff Our Financials $200,000 Funding for Services $400,000 Annual Budget $200,000 Funding for Research Funding Sources: PublicPrivateDonations This organization receives funding from a company that produces a test or treatment for the condition it serves: No If yes, % of funding from such companies? Our Membership 3,000 Membership Size 1 # of Chapters 3,000 Total Number on Mailing List 3,000 People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp Resources Disease resources include educational and informational materials that can be tagged to appear on specific disease pages. Cure CMD's YouTube Channel Added On: Jun 11, 2019 Category: General Language(s): English Disease(s): Congenital Muscular Dystrophy Disease Type(s): Rare Condition or Disease • Congenital onset • Musculoskeletal disorders Hundreds of hours of educational webinars about CMD Showing 1 of 1 resources. Show All Show Less Upcoming Events Conference: 2019 CMD Scientific & Family Conference When:Jul 25, 2019 08:15 AM (UTC -6:00 US CST). Ends on Jul 28, 2019. Multi-day event. Where:1 W. Wacker Drive, Chicago, Illinois 60601 Join us for the first-ever congenital muscle disease collaborative conference for stakeholders in the Congenital Muscular Dystrophy, Nemaline Myopathy, and Titinopathy communities. URL: https://www.scifam.info Email: email@example.com Diseases: Congenital Muscular Dystrophy • Nemaline myopathy Disease Types: Congenital onset • Neuromuscular disorders Download Showing 1 of 1 events. Show All Show Less This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?