Is to provide Ehlers-Danlos information, awareness, education, guidance and support for all those affected. Also for their families, the general public and those in the medical community.
We strive to bring recognition, identification and a correct diagnosis for ALL those affected. They are guided towards knowledgeable (skilled) medical professionals, appropriate treatments, preventive management, interventions and monitoring.
We advocate, support, assistance with medical crisis, networking and navigating the medical system. We help to foster funds for vital EDS research projects that could help improve the future and quality of life for the EDS patient.
We are committed to this mission!