International Rett Syndrome Foundation Disease Support Organization Last Updated: Jan 3, 2019 03:54:07 pm Established: 2007 Area Served: International The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services. Website: http://www.rettsyndrome.org Diseases Supported Rett syndrome 4600 Devitt Drive Cincinnati, Ohio 45246 United States 1-800-8187388513-874-3020 firstname.lastname@example.org 1 address 1 contact Show All This organization has not provided any social media links. Staff Speaks: English, None Telephone Translation: No (Translation services available for other languages) Our Organization Incorporated Nonprofit International Organization 501(c)3 Non-Profit Professional/Medical Board Board of Directors Paid Staff Our Financials N/A Funding for Services N/A Annual Budget $3,700,000 Funding for Research Funding Sources: N/A This organization receives funding from a company that produces a test or treatment for the condition it serves: No If yes, % of funding from such companies? Our Membership N/A Membership Size N/A # of Chapters N/A Total Number on Mailing List N/A People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp Resources Disease resources include educational and informational materials that can be tagged to appear on specific disease pages. Rett Syndrome Handbook Added On: Mar 18, 2013 Category: General Disease(s): Rett syndrome Rett Syndrome Handbook, 2nd edition. News and Media Center at IRSF Added On: Mar 18, 2013 Category: General Disease(s): Rett syndrome Current IRSF communications: IRSF General and Research Flash Rett Gazette Newsletters Showing 2 of 2 resources. Show All Show Less This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?