United Leukodystrophy Foundation, Inc. Disease Support Organization Last Updated: Jan 3, 2019 03:54:07 pm Established: 1982 Area Served: N/A The United Leukodystrophy Foundation serves individuals and families affected by leukodystrophy by exchanging information and promoting progress on research, treatment and prevention. Website: http://www.ulf.org Diseases Supported Childhood-onset cerebral adrenoleukodystrophy • Leukodystrophy 224 N 2nd Street, Suite 2 None DeKalb, Illinois 60115 United States (800) 728-5483(815) 748-3211 firstname.lastname@example.org This organization has not provided any social media links. Staff Speaks: English Telephone Translation: No (Translation services available for other languages) Our Organization Incorporated Nonprofit Area Served 501(c)3 Non-Profit Professional/Medical Board Board of Directors Paid Staff Our Financials N/A Funding for Services $425,000 Annual Budget N/A Funding for Research Funding Sources: N/A This organization receives funding from a company that produces a test or treatment for the condition it serves: No If yes, % of funding from such companies? Our Membership 5,000 Membership Size N/A # of Chapters 5,000 Total Number on Mailing List N/A People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?